A couple of bad days

The post below is a little misleading. I chose to post it anyway and just follow-up quickly with the latest news. I was actually finishing up the post Friday morning when we got a disturbing call from the hospital. Katleyn had a seizure. It lasted for a long time (almost 20 min.) They moved her back to the high level unit and ran a bunch of tests on her.

As of right now we don’t have any good explanation on what caused it. The good news is that they checked many of the potentially serious causes and they haven’t found anything yet. They did a CT and didn’t see any hemorrhaging in the brain or signs of a stroke. They ran a lot of other tests that have all come back without any answers. For about 24 hours after the seizure, she was also put on a BRAINZ monitor. The doctors didn’t see any obvious problems but the doctor who officially reads the data won’t be in until Monday afternoon.

Needless to say it was very disturbing to us. Things seemed to be going so well. We have asked a lot of questions but we don’t feel like we have a lot of answers yet. We have gotten used to seeing a lot of tubes and monitors on our babies but having probes attached to her head was a little hard. They have been removed now so it makes us feel more comfortable holding her. The good news is that in general she is still acting like herself. She was a little tired on Friday because of the anti-seizer medication but other than that, Amy has been able to continue feeding her and she seems to be doing well. We will update you when we know more.

As if this news weren’t disheartening enough tonight when we checked in on Brandon we got some more alarming news. He had accidentally been given 10 times the amount of Adavan (not sure of the spelling) than he should have received. They realized it immediately and where watching him closely. The nurse explained that they had a medication that would reverse the effects but it was much better not to give it if it wasn’t needed. One of the biggest things to watch was his breathing. A dose that was too large could even cause him to stop breathing.

I just called and he seemed to be doing really well. It has been well over an hour now and he is showing no signs of problems. They are going to continue to watch him very closely but the fact he wasn’t having any problems yet was a very good sign.

This is just what we needed…. more to worry about.

I will try and get some more pictures up soon. Oh and by the way Brandon is about 3 lbs. 1 oz. I will have to check on Katelyn again but I think she is around 4 lbs.