Friday, August 24, 2007

More stuff to watch for

Blake and Derek think that the best part of thier first soccer game was the refreshments.

What? My brother's are coming to see me!

Derek kissing Katelyn



Blake kissing Katelyn


Close up of Katelyn




The boys and Katelyn





Amy holding Brandon while they switched his bed.






Close up of Brandon from when they last tried to extubate him.



Both Brandon and Katelyn had eye exams recently and they found things that will need to be monitored closely. They both have mild retinopathy of prematurity (ROP). This means that the retinal vessels have begun to grow where they shouldn’t. Babies with their level of severity usually don’t require treatment and the eye heals within the first year of life. However it is just one more thing that they will be monitoring closely and watching to see if it gets any worse. The potential problems can range from needing glasses, even as a child, to blindness (although blindness seems to be really rare and only in very severe cases).

Katelyn is doing well and she continues to have her feeding time shortened. She was scheduled to have her second of three injections to treat the hemangioma on her lip. However, when the doctor saw how small it had gotten he was very shocked. He said that this kind of progress was “off the charts” and he didn’t think that she will ever need another injection. He will continue to monitor her but it was great news.

Brandon seems to be doing well but we are certainly more worried about him. The tube that he is using for the ventilator is leaking. It seems to be too small for his airway but the next size up would be too big. They have adjusted his ventilator to compensate for the leak and are hoping that they will be able to try extubating him again before they have to pull his tube and re-intubate him.

The biggest thing with Brandon is that he needs to grow. They have been increasing he amount of calories in his feedings and he is tolerating it well so they went up another step today. It is hard for a baby so small and with as little muscle mass as he has to breathe. He is working hard and most likely burning a lot of calories just breathing. He is growing slowly but he is still small.

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