Photos and an update

Katelyn taking a bath. (No tubes!)

Brandon in his new swing.

Brandon in his new swing.

We have seen a lot of this expression lately.

Brandon in his chair.

We are now down to just one tank!

We have a room full of equipment.

It has been really cold lately. This is a shot out of our window.

Things are certainly crazy. It is still surprising how hectic taking care of our kids can be. However things are looking a little better. Lately Brandon has had troubles eating because he has some painful gas. He starts crying about half way through his feeding and can’t finish on his own. There are many factors that could contribute to his gas but one of the big ones is that both he and Katelyn have C-Dif again. At first the doctor didn’t want to treat it but because of his problems we started medication today. For the first time ever he ate two compete feedings on his own – no tube involved. He is such a good little boy. He just needed a chance to do it without pain.

We went to the doctor’s office yesterday and we were quite a site. We have a twin stroller but I still had to carry Katelyn because the other seat was taken up by equipment. The good news is that Brandon’s heart and lungs seem to be improving. We were able to take him off of two different medications. The doctor also explained to us that by about 8 years old, the lungs have been pretty much replaced with new lungs so all of the scaring and problems should go away.